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Dysautonomia Foundation Inc

EIN 13-6145280 · files IRS Form 990, Schedule I

Given, as filed$7.1m2018–2024 · 16 grants
2018: $1.1m · 3 grants20182019: no grants on file for this year yet20192020: $1.2m · 2 grants20202021: $1.2m · 2 grants2021$1.2m2022: $1.1m · 3 grants20222023: $1.2m · 3 grants20232024: $1.2m · 3 grants2024$1.2m
Grantees5funded more than once, matching gifts aside
3 of 53of 5
Assets, year end$1.1mtax year 2024
2023: $1.5m2023$1.5m2024: $1.1m2024$1.1m
Board and officers16on its latest return

Where it gives

By cause and by place, from its own returns.

By cause

The cause each recipient registered with the IRS

Education$6.5m
Cause not on file$620.3k

Mostly grants abroad and recipients without a US registration. Shown, never hidden.

By place

Dollars received, by the recipient's state

half the top state or more10–50%2–10%under 2%

Grants abroad and place not on file: 10 grants · $620.3k

Who it funds most

3 of its 5 grantees were funded in more than one year.

Dysautonomia Foundation Inc's own IRS Form 990, Schedule I returns, as filed, in USD

Who funds the same organisations

Counted over its 5 largest grantees, leaving out fiscal sponsors and donor-advised funds, which share an address rather than a cause. A fact, not a partnership.

Its board and officers

From its latest return.

Faye GinsburgPresident
Allan CohenTreasurer
Brian StillmanDirector
Daniel LandauDirector
Edward BaranoffVice President
Gerald AdlerDirector
Gregg MeyersDirector
Jeffrey GoldbergerVice President
Jennifer SonensheinDirector
Laurent LandauVice President
Lisa NewmanVice President
Paul B WexlerVice President
Rebecca SernovitzDirector
Steven KietzVice President
Steven S FassSecretary
Lanie EtkindExecutive Dir.

Form 990 Part VII, tax year 2024, filing 202532239349302308

Name and title as its own return lists them. No pay, no address. A photograph appears only where the person's own organisation or a free licence publishes one, credited beside it; otherwise none. Anyone can ask to be removed: hello@philanova.ai.

Its money

What it gave, held and paid, by year.

Giving by year

2018: $1.1m · 3 grants20182019: no grants on file for this year yet20192020: $1.2m · 2 grants20202021: $1.2m · 2 grants2021$1.2m2022: $1.1m · 3 grants20222023: $1.2m · 3 grants20232024: $1.2m · 3 grants2024$1.2m

A year with no bar has no grants on file yet: its returns may not be loaded. It is not a year without giving.

Tax yearReturnAssets, year endGrants paidCharitable spending
2024Form 990$1.1m—$2.0m
2023Form 990$1.5m—$1.9m

As filed, in US dollars. Assets at fair market value where the return gives it.

Its returns6 filings
Tax yearFormFilingWhere to read it
2024IRS Form 990, Schedule I202532239349302308IRS batch file
2023IRS Form 990, Schedule I202412419349300641IRS batch file
2022IRS Form 990, Schedule I202303049349301625IRS batch file
2021IRS Form 990, Schedule I202212989349301766IRS batch file
2020IRS Form 990, Schedule I202143199349321944IRS batch file
2018IRS Form 990, Schedule I201912559349300106IRS batch file

An IRS batch file holds many returns; the filing number finds this one inside it.

The record as filedEvery table this page has always shown, in full.open

Dysautonomia Foundation Inc made 16 grants across 2018–2024, totalling $7.1m as filed.

Grants
16
Total, as filed
$7.1m
Years
2018–2024
Filed in
USD

Who it funds

OrganisationGrantsTotal
NYU SCHOOL OF MEDICINE6$6.5m
AUTONOMIC RESEARCH LLC5$432.1k
Montana State University3$135.6k
UNIVERSITY OF TENESSEE1$37.5k
VISIO-D CONSULTANTS LLC1$15.0k

By year

YearGrantsTotal
20183$1.1m
20202$1.2m
20212$1.2m
20223$1.1m
20233$1.2m
20243$1.2m

Where this came from

Identifier US-EIN-136145280. Register: Internal Revenue Service (US). Machine-readable: JSON.

What this page does not know

  • Wrong if: a figure recovered from a subtotal is read as the sum of the recovered rows. A subtotal divides onto a whole penny whatever its parts did, so rows the per-row rule refuses are inside these figures.
  • What they say they exist to do
  • What each grant was for
  • What they fund, by theme
  • Balance sheet and financials
  • Who runs it
  • Whether they accept proposals
  • Their own record on the register
  • No website on file
  • Leadership not yet identified
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