Myotonic Dystrophy Foundation
EIN 20-5014628 · files IRS Form 990, Schedule I
Where it gives
By cause and by place, from its own returns.
By cause
The cause each recipient registered with the IRS
Mostly grants abroad and recipients without a US registration. Shown, never hidden.
By place
Dollars received, by the recipient's state
half the top state or more10–50%2–10%under 2%
Grants abroad and place not on file: 8 grants · $905.0k
Who it funds most
6 of its 16 grantees were funded in more than one year.
Myotonic Dystrophy Foundation's own IRS Form 990, Schedule I returns, as filed, in USD
Who funds the same organisations
Counted over its 16 largest grantees, leaving out fiscal sponsors and donor-advised funds, which share an address rather than a cause. A fact, not a partnership.
Its board and officers
From its latest return.
Form 990 Part VII, tax year 2023, filing 202403199349315440
Name and title as its own return lists them. No pay, no address. A photograph appears only where the person's own organisation or a free licence publishes one, credited beside it; otherwise none. Anyone can ask to be removed: hello@philanova.ai.
Its money
What it gave, held and paid, by year.
Giving by year
| Tax year | Return | Assets, year end | Grants paid | Charitable spending |
|---|---|---|---|---|
| 2023 | Form 990 | $5.5m | — | $3.8m |
As filed, in US dollars. Assets at fair market value where the return gives it.
Its returns5 filings
| Tax year | Form | Filing | Where to read it |
|---|---|---|---|
| 2024 | IRS Form 990, Schedule I | 202533089349303183 | IRS batch file |
| 2023 | IRS Form 990, Schedule I | 202403199349315440 | IRS batch file |
| 2022 | IRS Form 990, Schedule I | 202343199349327279 | IRS batch file |
| 2021 | IRS Form 990, Schedule I | 202202599349300535 | IRS batch file |
| 2020 | IRS Form 990, Schedule I | 202112149349301601 | IRS batch file |
An IRS batch file holds many returns; the filing number finds this one inside it.
The record as filedEvery table this page has always shown, in full.open
Myotonic Dystrophy Foundation made 27 grants across 2020–2024, totalling $3.0m as filed.
- Grants
- 27
- Total, as filed
- $3.0m
- Years
- 2020–2024
- Filed in
- USD
Who it funds
| Organisation | Grants | Total |
|---|---|---|
| UNIVERISTY OF ROCHESTER | 2 | $405.0k |
| UNIVERSITY OF FLORIDA | 4 | $403.5k |
| UNVERSITY AT ALBANY | 2 | $350.0k |
| UNIVERSITY OF NEVADA | 2 | $195.0k |
| SAPIENZA UNIVERSITY OF ROME | 1 | $190.0k |
| STANFORD SCHOOL OF MEDICINE | 1 | $190.0k |
| UNIVERSITY OF UTAH | 1 | $190.0k |
| BAYLOR COLLEGE OF MEDICINE | 2 | $160.0k |
| GRIMN | 1 | $105.0k |
| MASSACHUSETTS GENERAL HOSP | 1 | $105.0k |
| UNIVERSITE DE MONTREAL | 1 | $105.0k |
| UNIVERSITY OF ILLINOIS | 1 | $105.0k |
| UNVERSITY OF ALBANY | 1 | $105.0k |
| EMORY UNIVERSITY | 1 | $55.0k |
| UNIVERSITY OF CA SAN DIEGO | 1 | $55.0k |
By year
| Year | Grants | Total |
|---|---|---|
| 2020 | 2 | $110.0k |
| 2021 | 6 | $563.5k |
| 2022 | 5 | $855.0k |
| 2023 | 6 | $645.0k |
| 2024 | 8 | $805.0k |
Where this came from
Identifier US-EIN-205014628. Register: Internal Revenue Service (US). Machine-readable: JSON.
What this page does not know
- Wrong if: a figure recovered from a subtotal is read as the sum of the recovered rows. A subtotal divides onto a whole penny whatever its parts did, so rows the per-row rule refuses are inside these figures.
- What they say they exist to do
- What each grant was for
- What they fund, by theme
- Balance sheet and financials
- Who runs it
- Whether they accept proposals
- Their own record on the register
- No website on file
- Leadership not yet identified