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Dysautonomia International Inc

EIN 45-5437249 · files IRS Form 990, Schedule I

Given, as filed$684.5k2020–2024 · 21 grants
2020: $90.0k · 2 grants20202021: $125.0k · 4 grants20212022: $240.0k · 7 grants2022$240.0k2023: $175.2k · 6 grants20232024: $54.4k · 2 grants2024$54.4k
Grantees8funded more than once, matching gifts aside
6 of 86of 8
Assets, year end$2.7mtax year 2024
2023: $2.8m2023$2.8m2024: $2.7m2024$2.7m
Board and officers7on its latest return

Where it gives

By cause and by place, from its own returns.

By cause

The cause each recipient registered with the IRS

Education$85.0k
Health care$69.3k
Cause not on file$530.2k

Mostly grants abroad and recipients without a US registration. Shown, never hidden.

By place

Dollars received, by the recipient's state

half the top state or more10–50%2–10%under 2%

Grants abroad and place not on file: 15 grants · $505.2k

Who it funds most

6 of its 8 grantees were funded in more than one year.

Dysautonomia International Inc's own IRS Form 990, Schedule I returns, as filed, in USD

Who funds the same organisations

Counted over its 8 largest grantees, leaving out fiscal sponsors and donor-advised funds, which share an address rather than a cause. A fact, not a partnership.

Its board and officers

From its latest return.

Lauren Stiles JdPresident & CEO
Amy Kohut JdDirector
Irene CollinsDirector
Jacqueline Rutter GullyVice President
Liza Fisher MbaSecretary
Salvatore Desena MdDirector
Shannon KoplitzTreasurer & CFO

Form 990 Part VII, tax year 2024, filing 202522879349300602

Name and title as its own return lists them. No pay, no address. A photograph appears only where the person's own organisation or a free licence publishes one, credited beside it; otherwise none. Anyone can ask to be removed: hello@philanova.ai.

Its money

What it gave, held and paid, by year.

Giving by year

2020: $90.0k · 2 grants20202021: $125.0k · 4 grants20212022: $240.0k · 7 grants2022$240.0k2023: $175.2k · 6 grants20232024: $54.4k · 2 grants2024$54.4k
Tax yearReturnAssets, year endGrants paidCharitable spending
2024Form 990$2.7m—$1.2m
2023Form 990$2.8m—$1.2m

As filed, in US dollars. Assets at fair market value where the return gives it.

Its returns5 filings
Tax yearFormFilingWhere to read it
2024IRS Form 990, Schedule I202522879349300602IRS batch file
2023IRS Form 990, Schedule I202441729349301709IRS batch file
2022IRS Form 990, Schedule I202313109349303246IRS batch file
2021IRS Form 990, Schedule I202223079349302942IRS batch file
2020IRS Form 990, Schedule I202210079349301531IRS batch file

An IRS batch file holds many returns; the filing number finds this one inside it.

The record as filedEvery table this page has always shown, in full.open

Dysautonomia International Inc made 21 grants across 2020–2024, totalling $684.5k as filed.

Grants
21
Total, as filed
$684.5k
Years
2020–2024
Filed in
USD

Who it funds

OrganisationGrantsTotal
UNIVSERSITY OF TEXAS3$150.0k
Regents of Univ of CALIFORNIA4$130.2k
Leeland Stadford Junior Unive2$85.0k
John Hopkins University2$75.0k
University of Toledo3$75.0k
UNIVERSITY OF UTAH2$70.0k
Ann & Robert H Lurie Children2$39.4k
Brigham & Womens Hospital1$30.0k
MARY HITCHCOCK HOSPITAL1$15.0k
THE METROLHEALTH1$15.0k

By year

YearGrantsTotal
20202$90.0k
20214$125.0k
20227$240.0k
20236$175.2k
20242$54.4k

Where this came from

Identifier US-EIN-455437249. Register: Internal Revenue Service (US). Machine-readable: JSON.

What this page does not know

  • Wrong if: a figure recovered from a subtotal is read as the sum of the recovered rows. A subtotal divides onto a whole penny whatever its parts did, so rows the per-row rule refuses are inside these figures.
  • What they say they exist to do
  • What each grant was for
  • What they fund, by theme
  • Balance sheet and financials
  • Who runs it
  • Whether they accept proposals
  • Their own record on the register
  • No website on file
  • Leadership not yet identified
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