Public Record · organisation

Myotonic Dystrophy Foundation

Health: diseases and conditionsOakland, CAEIN 20-5014628 myotonic.org

Funded again31 of its 67 funders came back

Funders on the record67187 grants · 2017–2025

Came back31funders gave in two or more years

Received, as funders filed it$4.9mby tax year

Revenue, its own return$2.4mtax year 2023

Who funds it

Each funder's own tax return, year by year. A fact on a filing, never a verdict.

Funder2019202020212022202320242025As filed

Greystone Foundation came backFunded by Greystone Foundation in 2017, 2018, 2020, 2021, 2022, 2023, 2024 and 2025 (IRS 990-PF)

IRS 990-PF · tax year 2025 · filing 202621349349103637 · IRS batch file

$150.8k
8 grants

Athens Area Community Foundation Inc came backFunded by Athens Area Community Foundation Inc in 2017, 2018, 2019, 2020, 2021, 2022, 2023 and 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202641179349300914 · IRS batch file

$254.3k
8 grants

SCHWAB CHARITABLE FUND came backFunded by SCHWAB CHARITABLE FUND in 2017, 2018, 2019, 2020, 2021, 2022, 2023 and 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202611199349300601 · IRS batch file

$827.3k
8 grants

Posner-Wallace Foundation came backFunded by Posner-Wallace Foundation in 2017, 2018, 2020, 2021, 2022, 2023 and 2024 (IRS 990-PF)

IRS 990-PF · tax year 2024 · filing 202513189349102711 · IRS batch file

$2.8k
7 grants

The Oregon Community Foundation came backFunded by The Oregon Community Foundation in 2017, 2018, 2020, 2021, 2022, 2023 and 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202503189349314430 · IRS batch file

$181.2k
7 grants

Network For Good Inc came backFunded by Network For Good Inc in 2018, 2020, 2021, 2022, 2023 and 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202513039349301631 · IRS batch file

$1.2m
6 grants

Utopia Fund came backFunded by Utopia Fund in 2018, 2020, 2021, 2022, 2023 and 2024 (IRS 990-PF)

IRS 990-PF · tax year 2024 · filing 202543009349100229 · IRS batch file

$120.0k
6 grants

American Online Giving Foundation Inc came backFunded by American Online Giving Foundation Inc in 2019, 2020, 2021, 2022 and 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202641969349302754 · IRS batch file

$84.4k
5 grants

Community Foundations Of The Hudson Valley came backFunded by Community Foundations Of The Hudson Valley in 2020, 2021, 2022, 2023 and 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202503469349300130 · IRS batch file

$33.0k
5 grants

Mary W Harriman Foundation came backFunded by Mary W Harriman Foundation in 2020, 2021, 2022, 2023 and 2024 (IRS 990-PF)

IRS 990-PF · tax year 2024 · filing 202523189349105232 · IRS batch file

$130.0k
5 grants

Morgan Stanley Global Impact Funding Trust Inc came backFunded by Morgan Stanley Global Impact Funding Trust Inc in 2019, 2021, 2022, 2023 and 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202503239349300435 · IRS batch file

$73.0k
5 grants

Segal Family-United World Foundation came backFunded by Segal Family-United World Foundation in 2017, 2018, 2022, 2023 and 2024 (IRS 990-PF)

IRS 990-PF · tax year 2024 · filing 202513219349101116 · IRS batch file

$14.5k
5 grants

THE ROUNDHOUSE FOUNDATION came backFunded by THE ROUNDHOUSE FOUNDATION in 2020, 2021, 2022, 2023 and 2024 (IRS 990-PF)

IRS 990-PF · tax year 2024 · filing 202502669349101055 · IRS batch file

$125.0k
5 grants

Bank Of America Charitable Foundation Inc came backFunded by Bank Of America Charitable Foundation Inc in 2018, 2020, 2021, 2022 and 2023 (IRS 990-PF)

IRS 990-PF · tax year 2023 · filing 202411309349100126 · IRS batch file

$2.0k
7 grants

its own grantgiven through a donor-advised fundmatching giftBigger dot, bigger grant. Hover a dot for the amount and the form.

All 67 funders53 more

Brad And Danielle Tilden Family Foundation came backFunded by Brad And Danielle Tilden Family Foundation in 2022, 2023, 2024 and 2025 (IRS 990-PF)

IRS 990-PF · tax year 2025 · filing 202631339349104768 · IRS batch file

$70.0k
4 grants

Arthur J Gallagher Foundation came backFunded by Arthur J Gallagher Foundation in 2021, 2022, 2023 and 2024 (IRS 990-PF)

IRS 990-PF · tax year 2024 · filing 202523149349102812 · IRS batch file

$5.0k
4 grants

CHARITIES AID FOUNDATION AMERICA came backFunded by CHARITIES AID FOUNDATION AMERICA in 2018, 2019, 2022 and 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202610489349300906 · IRS batch file

$47.8k
4 grants

Hunter Fund came backFunded by Hunter Fund in 2021, 2022, 2023 and 2024 (IRS 990-PF)

IRS 990-PF · tax year 2024 · filing 202543119349100034 · IRS batch file

$20.0k
4 grants

462626883 came backFunded by 462626883 in 2020, 2021, 2022 and 2023 (IRS 990-PF)

IRS 990-PF · tax year 2023 · filing 202540919349100629 · IRS batch file

$12.7k
4 grants

Hodges Charitable Foundation 37208 came backFunded by Hodges Charitable Foundation 37208 in 2023, 2024 and 2025 (IRS 990-PF)

IRS 990-PF · tax year 2025 · filing 202631329349102153 · IRS batch file

$19.5k
3 grants

Andoni Family Foundation came backFunded by Andoni Family Foundation in 2021, 2023 and 2024 (IRS 990-PF)

IRS 990-PF · tax year 2024 · filing 202522259349100307 · IRS batch file

$12.0k
3 grants

Springcreek Foundation came backFunded by Springcreek Foundation in 2017, 2020 and 2022 (IRS 990-PF)

IRS 990-PF · tax year 2022 · filing 202323189349105317 · IRS batch file

$12.5k
3 grants

Leslie And Sheila Klein Foundation Inc came backFunded by Leslie And Sheila Klein Foundation Inc in 2022 and 2025 (IRS 990-PF)

IRS 990-PF · tax year 2025 · filing 202611349349101431 · IRS batch file

$82.5k
2 grants

Baron Capital Foundation came backFunded by Baron Capital Foundation in 2022 and 2024 (IRS 990-PF)

IRS 990-PF · tax year 2024 · filing 202512469349100526 · IRS batch file

$45.0k
2 grants

Bodman Family Foundation came backFunded by Bodman Family Foundation in 2023 and 2024 (IRS 990-PF)

IRS 990-PF · tax year 2024 · filing 202513119349100106 · IRS batch file

$10.0k
2 grants

MARIN COMMUNITY FOUNDATION came backFunded by MARIN COMMUNITY FOUNDATION in 2022 and 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202621299349300222 · IRS batch file

$27.0k
2 grants

Paypal Charitable Giving Fund came backFunded by Paypal Charitable Giving Fund in 2023 and 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202533079349301308 · IRS batch file

$41.9k
2 grants

The Feil Family Foundation came backFunded by The Feil Family Foundation in 2022 and 2024 (IRS 990-PF)

IRS 990-PF · tax year 2024 · filing 202640379349100904 · IRS batch file

$55.0k
2 grants

Graham Stretch Family Foundation came backFunded by Graham Stretch Family Foundation in 2020 and 2021 (IRS 990-PF)

IRS 990-PF · tax year 2021 · filing 202223159349103402 · IRS batch file

$10.0k
2 grants

Pittsburgh Foundation came backFunded by Pittsburgh Foundation in 2020 and 2021 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2021 · filing 202213189349300526

$20.0k
2 grants

THE CALIFORNIA WELLNESS FOUNDATION came backFunded by THE CALIFORNIA WELLNESS FOUNDATION in 2020 and 2021 (IRS 990-PF)

IRS 990-PF · tax year 2021 · filing 202243089349100939 · IRS batch file

$15.0k
2 grants

Apple Foundation Funded by Apple Foundation in 2025 (IRS 990-PF)

IRS 990-PF · tax year 2025 · filing 202601199349101205 · IRS batch file

$5.0k
1 grant

Salmon Foundation Inc Funded by Salmon Foundation Inc in 2025 (IRS 990-PF)

IRS 990-PF · tax year 2025 · filing 202622039349100007 · IRS batch file

$5.0k
1 grant

Sarah Tod Fund Funded by Sarah Tod Fund in 2025 (IRS 990-PF)

IRS 990-PF · tax year 2025 · filing 202641329349103169 · IRS batch file

$30.0k
1 grant

650764935 Funded by 650764935 in 2024 (IRS 990-PF)

IRS 990-PF · tax year 2024 · filing 202540719349100704 · IRS batch file

$25.6k
1 grant

CLARK CHARITABLE FOUNDATION INC DBA A JAMES & ALICE B CLARK FOUNDATION Funded by CLARK CHARITABLE FOUNDATION INC DBA A JAMES & ALICE B CLARK FOUNDATION in 2024 (IRS 990-PF)

IRS 990-PF · tax year 2024 · filing 202543119349101309 · IRS batch file

$10.0k
1 grant

Equitable Foundation Inc Funded by Equitable Foundation Inc in 2024 (IRS 990-PF)

IRS 990-PF · tax year 2024 · filing 202533189349104723 · IRS batch file

$100
1 grant

The Sue Anschutz Rodgers Foundation Funded by The Sue Anschutz Rodgers Foundation in 2024 (IRS 990-PF)

IRS 990-PF · tax year 2024 · filing 202641399349100214 · IRS batch file

$2.5k
1 grant

Analog Devices Foundation Funded by Analog Devices Foundation in 2023 (IRS 990-PF)

IRS 990-PF · tax year 2023 · filing 202540719349100314 · IRS batch file

$2.1k
1 grant

Edward Jones Foundation Funded by Edward Jones Foundation in 2023 (IRS 990-PF)

IRS 990-PF · tax year 2023 · filing 202510359349100106 · IRS batch file

$100
1 grant

Gifford Foundation Funded by Gifford Foundation in 2023 (IRS 990-PF)

IRS 990-PF · tax year 2023 · filing 202520229349100732 · IRS batch file

$100
1 grant

Louis A & Lillian L Glazer Family Foundation Inc Funded by Louis A & Lillian L Glazer Family Foundation Inc in 2023 (IRS 990-PF)

IRS 990-PF · tax year 2023 · filing 202401309349101025 · IRS batch file

$500
1 grant

New York Community Trust Funded by New York Community Trust in 2023 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2023 · filing 202443179349309079 · IRS batch file

$15.0k
1 grant

THE US CHARITABLE GIFT TRUST Funded by THE US CHARITABLE GIFT TRUST in 2023 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2023 · filing 202431319349304428 · IRS batch file

$12.8k
1 grant

Verizon Foundation Funded by Verizon Foundation in 2023 (IRS 990-PF)

IRS 990-PF · tax year 2023 · filing 202403169349102395 · IRS batch file

$50
1 grant

Fairfield Countys Community Foundation Inc Funded by Fairfield Countys Community Foundation Inc in 2022 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2022 · filing 202431209349300923 · IRS batch file

$6.5k
1 grant

The Blackbaud Giving Fund Funded by The Blackbaud Giving Fund in 2022 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2022 · filing 202312409349300046 · IRS batch file

$6.0k
1 grant

TIDES FOUNDATION Funded by TIDES FOUNDATION in 2022 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2022 · filing 202400469349300305 · IRS batch file

$10.0k
1 grant

Joyce Charitable Fund Funded by Joyce Charitable Fund in 2021 (IRS 990-PF)

IRS 990-PF · tax year 2021 · filing 202231329349103788 · IRS batch file

$1.0k
1 grant

Pine Island Collective Funded by Pine Island Collective in 2021 (IRS 990-PF)

IRS 990-PF · tax year 2021 · filing 202203199349106645 · IRS batch file

$1.0k
1 grant

Tuthill Square Foundation Funded by Tuthill Square Foundation in 2021 (IRS 990-PF)

IRS 990-PF · tax year 2021 · filing 202221339349101032 · IRS batch file

$500
1 grant

Dorothy Collins Brown Charitable Foundation Funded by Dorothy Collins Brown Charitable Foundation in 2020 (IRS 990-PF)

IRS 990-PF · tax year 2020 · filing 202101209349101810 · IRS batch file

$5.0k
1 grant

J M Haggar Jr Family Foundation Funded by J M Haggar Jr Family Foundation in 2020 (IRS 990-PF)

IRS 990-PF · tax year 2020 · filing 202103199349105150 · IRS batch file

$1.0k
1 grant

Fredman Family Charitable Trust Funded by Fredman Family Charitable Trust in 2019 (IRS 990-PF)

IRS 990-PF · tax year 2019 · filing 202100409349100015 · IRS batch file

$250
1 grant

Alfred And Kathleen Murabito Foundation Funded by Alfred And Kathleen Murabito Foundation in 2018 (IRS 990-PF)

IRS 990-PF · tax year 2018 · filing 201912819349100631 · IRS batch file

$500
1 grant

Felker Family Foundation Inc Funded by Felker Family Foundation Inc in 2018 (IRS 990-PF)

IRS 990-PF · tax year 2018 · filing 201921429349100502 · IRS batch file

$10.0k
1 grant

Margaret A & William A Maloney Family Foundation Funded by Margaret A & William A Maloney Family Foundation in 2018 (IRS 990-PF)

IRS 990-PF · tax year 2018 · filing 201931349349103778 · IRS batch file

$25.0k
1 grant

Simson-First Foundation Funded by Simson-First Foundation in 2018 (IRS 990-PF)

IRS 990-PF · tax year 2018 · filing 201930719349100218 · IRS batch file

$1.0k
1 grant

Fidelity Investments Charitable Gift Fund donor-advisedFunded through Fidelity Investments Charitable Gift Fund in 2017, 2018, 2019, 2020, 2021, 2022, 2023 and 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202601389349301700 · IRS batch file

$459.0k
8 grants

NATIONAL PHILANTHROPIC TRUST donor-advisedFunded through NATIONAL PHILANTHROPIC TRUST in 2017, 2020, 2022, 2023 and 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202601289349302480 · IRS batch file

$229.8k
5 grants

AMERICAN ENDOWMENT FOUNDATION donor-advisedFunded through AMERICAN ENDOWMENT FOUNDATION in 2021, 2022 and 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202513219349310376 · IRS batch file

$58.8k
3 grants

NATL CHRISTIAN CHARITABLE FDN INC donor-advisedFunded through NATL CHRISTIAN CHARITABLE FDN INC in 2017, 2023 and 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202513109349303201 · IRS batch file

$120.1k
3 grants

Silicon Valley Community Foundation donor-advisedFunded through Silicon Valley Community Foundation in 2020 and 2023 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2023 · filing 202413129349304911 · IRS batch file

$75.0k
2 grants

VANGUARD CHARITABLE ENDOWMENT PROGRAM donor-advisedFunded through VANGUARD CHARITABLE ENDOWMENT PROGRAM in 2020 and 2021 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2021 · filing 202331359349303108

$15.4k
2 grants

Janus Foundation matching giftsMatching gift from Janus Foundation in 2021 (IRS 990-PF)

IRS 990-PF · tax year 2021 · filing 202243199349104549 · IRS batch file

$100
1 grant

AbbVie Foundation matching giftsMatching gift from AbbVie Foundation in 2018 (IRS 990-PF)

IRS 990-PF · tax year 2018 · filing 201931339349102918 · IRS batch file

$260
1 grant

Andrew W Mellon Foundation matching giftsMatching gift from Andrew W Mellon Foundation in 2017 (IRS 990-PF)

IRS 990-PF · tax year 2017 · filing 201813179349102126 · IRS batch file

$8.9k
1 grant

A funder came back when it made its own grants in two or more tax years, by its own IRS return. Matching gifts, and gifts a donor-advised fund passes on for its donors, are shown and labelled, and do not count.

Its money

From the return it filed itself.

Revenue$2.4m

Spending$3.8m

Net assets, year end$4.0m

Total assets, year end$5.5m

IRS Form 990 · tax year 2023 · filing 202403199349315440 · IRS batch file

Its leaders

The top three roles on its latest return.

CEOTanya StevensonForm 990 · 2023

ChairJeremy KellyForm 990 · 2023

TreasurerDavid HerbertForm 990 · 2023

Name, title and year only, as its own return lists them. No pay, no address. Anyone can ask to be removed: hello@philanova.ai.

Its charity status

From the IRS's own lists.

501(c)(3)recognised in 2007 · Public charity supported by government or the general public — 170(b)(1)(A)(vi)IRS exempt organisations register

Listed for deductible giftsIRS Publication 78

Not revokedIRS automatic revocation list

Data and sources

Everything above, as tables and as open data.

Grants received, by year9 years

Tax year	Grants	As filed
2017	11	$239.0k
2018	16	$636.5k
2019	7	$137.9k
2020	24	$661.1k
2021	28	$663.8k
2022	30	$766.7k
2023	32	$701.8k
2024	32	$965.4k
2025	7	$112.5k

What this page does not knowread before quoting

Grants from funders that do not file a US return, and gifts from individuals.
Each row is what the funder said it paid, not what this organisation said it received.
A tax year that is not yet loaded looks like a year with no grant.

The same page as dataJSON · free, no key

/open/api/grantee/205014628

Ratings from its funders

None yet. Stars appear here only when a funder that funded this organisation chooses to give them, in its own name, with the year it funded. PhilaNova never rates on a free page.

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This organisation can correct a fact on this page and add its own statement. Every change is logged.

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For advisersSee Myotonic Dystrophy Foundation's full diligence file, its place on the Vetted Marketplace, and the funders most like your client who already back it.See what advisers get