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Beyond Batten Disease Foundation

EducationAustin, TXEIN 26-3223661 beyondbatten.org
Funded again9 of its 34 funders came back
Funders on the record3464 grants · 2017–2025
John D and Catherine T MacArthur FoundationFidelity Investments Charitable Gift Fund
Came back9funders gave in two or more years
9 of 349of 34
Received, as funders filed it$675.6kby tax year
2017: $55.2k · 9 grants172018: $352.1k · 11 grants18$352.1k2019: $60.5k · 5 grants192020: $23.3k · 6 grants202021: $21.7k · 6 grants212022: $23.5k · 8 grants222023: $77.1k · 10 grants232024: $61.2k · 8 grants242025: $1.0k · 1 grants25$1.0k
Revenue, its own return$1.0mtax year 2022

Who funds it

Each funder's own tax return, year by year. A fact on a filing, never a verdict.

Funder2019202020212022202320242025As filed
The Bierly-Boasberg Foundation came backFunded by The Bierly-Boasberg Foundation in 2020, 2021, 2022, 2023, 2024 and 2025 (IRS 990-PF)

IRS 990-PF · tax year 2025 · filing 202621349349102867 · IRS batch file

$6.5k
6 grants
Hillcrest Foundation came backFunded by Hillcrest Foundation in 2020, 2021, 2022, 2023 and 2024 (IRS 990-PF)

IRS 990-PF · tax year 2024 · filing 202513019349100206 · IRS batch file

$35.0k
5 grants
K P & Phoebe Tsolainos Foundation Inc came backFunded by K P & Phoebe Tsolainos Foundation Inc in 2021, 2022, 2023 and 2024 (IRS 990-PF)

IRS 990-PF · tax year 2024 · filing 202541329349103509 · IRS batch file

$1.8k
4 grants
462626883 came backFunded by 462626883 in 2020, 2021, 2022 and 2023 (IRS 990-PF)

IRS 990-PF · tax year 2023 · filing 202540919349100629 · IRS batch file

$6.1k
4 grants
Waterproof Foundation Inc came backFunded by Waterproof Foundation Inc in 2018, 2020, 2021 and 2022 (IRS 990-PF)

IRS 990-PF · tax year 2022 · filing 202331359349101578 · IRS batch file

$25.0k
4 grants
SCHWAB CHARITABLE FUND came backFunded by SCHWAB CHARITABLE FUND in 2017, 2018 and 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202611199349300601 · IRS batch file

$18.6k
3 grants
THE GREATER NEW ORLEANS FOUNDATION came backFunded by THE GREATER NEW ORLEANS FOUNDATION in 2017, 2018 and 2020 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2020 · filing 202143509349300419 · IRS batch file

$20.0k
3 grants
Paypal Charitable Giving Fund came backFunded by Paypal Charitable Giving Fund in 2022 and 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202533079349301308 · IRS batch file

$25.0k
2 grants
Texas Childrens Hospital came backFunded by Texas Childrens Hospital in 2017 and 2019 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2019 · filing 202112239349301736 · IRS batch file

$11.5k
2 grants
American Online Giving Foundation Inc Funded by American Online Giving Foundation Inc in 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202641969349302754 · IRS batch file

$10.8k
1 grant
Admirals Club Of Austin Inc Funded by Admirals Club Of Austin Inc in 2023 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2023 · filing 202401309349303680 · IRS batch file

$12.0k
1 grant
CHARITIES AID FOUNDATION AMERICA Funded by CHARITIES AID FOUNDATION AMERICA in 2023 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2023 · filing 202530589349300723 · IRS batch file

$5.5k
1 grant
Dewine Family Foundation Inc Funded by Dewine Family Foundation Inc in 2023 (IRS 990-PF)

IRS 990-PF · tax year 2023 · filing 202443039349101019 · IRS batch file

$250
1 grant
431595600 Funded by 431595600 in 2022 (IRS 990-PF)

IRS 990-PF · tax year 2022 · filing 202343129349101119 · IRS batch file

$1.0k
1 grant

its own grantgiven through a donor-advised fundmatching giftBigger dot, bigger grant. Hover a dot for the amount and the form.

All 34 funders20 more
Enterprise Holdings Foundation Funded by Enterprise Holdings Foundation in 2022 (IRS 990-PF)

IRS 990-PF · tax year 2022 · filing 202411629349100321 · IRS batch file

$2.5k
1 grant
Flowerree Foundation Funded by Flowerree Foundation in 2020 (IRS 990-PF)

IRS 990-PF · tax year 2020 · filing 202103199349101100 · IRS batch file

$500
1 grant
Franklin I Fickett Charitable Foundation Funded by Franklin I Fickett Charitable Foundation in 2019 (IRS 990-PF)

IRS 990-PF · tax year 2019 · filing 202031289349101608 · IRS batch file

$2.0k
1 grant
RAYMOND JAMES CHARITABLE ENDOWMENT FUND Funded by RAYMOND JAMES CHARITABLE ENDOWMENT FUND in 2019 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2019 · filing 202130279349300023 · IRS batch file

$25.0k
1 grant
Stanislaus Community Foundation Funded by Stanislaus Community Foundation in 2019 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2019 · filing 202012309349301596 · IRS batch file

$10.0k
1 grant
208164151 Funded by 208164151 in 2018 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2018 · filing 201903199349305325 · IRS batch file

$11.2k
1 grant
Bank Of America Charitable Foundation Inc Funded by Bank Of America Charitable Foundation Inc in 2018 (IRS 990-PF)

IRS 990-PF · tax year 2018 · filing 201931349349102143 · IRS batch file

$5.0k
1 grant
Hojel Schumacher Foundation Funded by Hojel Schumacher Foundation in 2018 (IRS 990-PF)

IRS 990-PF · tax year 2018 · filing 201901359349102020 · IRS batch file

$30.0k
1 grant
La Brasada Foundation Funded by La Brasada Foundation in 2018 (IRS 990-PF)

IRS 990-PF · tax year 2018 · filing 201933189349103513 · IRS batch file

$100.0k
1 grant
Michael And Marcia Neundorfer Foundation Inc Funded by Michael And Marcia Neundorfer Foundation Inc in 2018 (IRS 990-PF)

IRS 990-PF · tax year 2018 · filing 201912339349100101 · IRS batch file

$200
1 grant
Others First Inc Funded by Others First Inc in 2018 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2018 · filing 201923109349301287 · IRS batch file

$5.0k
1 grant
Chi St Lukes Health Baylor College Of Medicine Medical Center Funded by Chi St Lukes Health Baylor College Of Medicine Medical Center in 2017 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2017 · filing 201911339349306836 · IRS batch file

$5.0k
1 grant
John D and Catherine T MacArthur Foundation logo
John D and Catherine T MacArthur Foundation Funded by John D and Catherine T MacArthur Foundation in 2017 (IRS 990-PF)

IRS 990-PF · tax year 2017 · filing 201813199349100836 · IRS batch file

$7.5k
1 grant
Shepherd 5 Points Family Foundation Funded by Shepherd 5 Points Family Foundation in 2017 (IRS 990-PF)

IRS 990-PF · tax year 2017 · filing 201823199349101142 · IRS batch file

$5.5k
1 grant
THE DALLAS FOUNDATION Funded by THE DALLAS FOUNDATION in 2017 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2017 · filing 201813199349310111 · IRS batch file

$5.0k
1 grant
Weaver And Tidwell Privatefoundation Funded by Weaver And Tidwell Privatefoundation in 2017 (IRS 990-PF)

IRS 990-PF · tax year 2017 · filing 201930609349100603 · IRS batch file

$500
1 grant
Fidelity Investments Charitable Gift Fund logo
Fidelity Investments Charitable Gift Fund donor-advisedFunded through Fidelity Investments Charitable Gift Fund in 2017, 2018, 2019, 2023 and 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202601389349301700 · IRS batch file

$90.6k
5 grants
NATIONAL PHILANTHROPIC TRUST donor-advisedFunded through NATIONAL PHILANTHROPIC TRUST in 2021, 2023 and 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202601289349302480 · IRS batch file

$24.0k
3 grants
VANGUARD CHARITABLE ENDOWMENT PROGRAM donor-advisedFunded through VANGUARD CHARITABLE ENDOWMENT PROGRAM in 2023 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2023 · filing 202511349349313096 · IRS batch file

$10.5k
1 grant
AMERICAN ENDOWMENT FOUNDATION donor-advisedFunded through AMERICAN ENDOWMENT FOUNDATION in 2018 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2018 · filing 201923179349302672 · IRS batch file

$156.5k
1 grant

A funder came back when it made its own grants in two or more tax years, by its own IRS return. Matching gifts, and gifts a donor-advised fund passes on for its donors, are shown and labelled, and do not count.

Its money

From the return it filed itself.

Revenue$1.0m
Spending$1.0m
Net assets, year end$3.0m
Total assets, year end$3.2m

IRS Form 990 · tax year 2022 · filing 202431359349304138 · IRS batch file

Its leaders

The top three roles on its latest return.

President/CEO and SecretaryMary Beth KiserForm 990 · 2022
Board ChairT Craig BensonForm 990 · 2022

Name, title and year only, as its own return lists them. No pay, no address. Anyone can ask to be removed: hello@philanova.ai.

Its charity status

From the IRS's own lists.

501(c)(3)recognised in 2009 · Public charity supported by government or the general public — 170(b)(1)(A)(vi)IRS exempt organisations register
Listed for deductible giftsIRS Publication 78
Not revokedIRS automatic revocation list

Data and sources

Everything above, as tables and as open data.

Grants received, by year9 years
Tax yearGrantsAs filed
20179$55.2k
201811$352.1k
20195$60.5k
20206$23.3k
20216$21.7k
20228$23.5k
202310$77.1k
20248$61.2k
20251$1.0k
What this page does not knowread before quoting
  • Grants from funders that do not file a US return, and gifts from individuals.
  • Each row is what the funder said it paid, not what this organisation said it received.
  • A tax year that is not yet loaded looks like a year with no grant.
The same page as dataJSON · free, no key

/open/api/grantee/263223661

Ratings from its funders

None yet. Stars appear here only when a funder that funded this organisation chooses to give them, in its own name, with the year it funded. PhilaNova never rates on a free page.

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