Public Record · organisation

Forgotten Diseases Research Foundation

Medical researchSanta Clara, CAEIN 45-4470463 forgottendiseases.org

Funded again2 of its 3 funders came back

Funders on the record39 grants · 2017–2024

Came back2funders gave in two or more years

Received, as funders filed it$364.3kby tax year

Revenue, its own return$87.1ktax year 2024

Who funds it

Each funder's own tax return, year by year. A fact on a filing, never a verdict.

Funder201720202021202220232024As filed

Johns Hopkins University came backFunded by Johns Hopkins University in 2020, 2021, 2022, 2023 and 2024 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2024 · filing 202611359349312681 · IRS batch file

$257.7k
5 grants

Ataxia Telangiectasia Childrens Project Inc came backFunded by Ataxia Telangiectasia Childrens Project Inc in 2020, 2021 and 2023 (IRS Form 990, Schedule I)

IRS Form 990, Schedule I · tax year 2023 · filing 202531059349302408 · IRS batch file

$71.6k
3 grants

Harry L Willett Foundation Funded by Harry L Willett Foundation in 2017 (IRS 990-PF)

IRS 990-PF · tax year 2017 · filing 201910749349100606 · IRS batch file

$35.0k
1 grant

its own grantgiven through a donor-advised fundmatching giftBigger dot, bigger grant. Hover a dot for the amount and the form.

A funder came back when it made its own grants in two or more tax years, by its own IRS return. Matching gifts, and gifts a donor-advised fund passes on for its donors, are shown and labelled, and do not count.

Its money

From the return it filed itself.

Revenue$87.1k

Spending$83.4k

Net assets, year end$120.4k

Total assets, year end$120.4k

Revenue by year

Spending by year

IRS Form 990EZ · tax year 2024 · filing 202501509349200845 · IRS batch file

Its leaders

The top three roles on its latest return.

Not on file: no 990 or 990-PF return naming its officers is loaded for this EIN.

Its charity status

From the IRS's own lists.

501(c)(3)recognised in 2012 · Public charity supported by government or the general public — 170(b)(1)(A)(vi)IRS exempt organisations register

Listed for deductible giftsIRS Publication 78

Not revokedIRS automatic revocation list

Data and sources

Everything above, as tables and as open data.

Grants received, by year6 years

Tax year	Grants	As filed
2017	1	$35.0k
2020	2	$64.0k
2021	2	$52.4k
2022	1	$34.7k
2023	2	$93.2k
2024	1	$84.9k

What this page does not knowread before quoting

Grants from funders that do not file a US return, and gifts from individuals.
Each row is what the funder said it paid, not what this organisation said it received.
A tax year that is not yet loaded looks like a year with no grant.

The same page as dataJSON · free, no key

/open/api/grantee/454470463

Ratings from its funders

None yet. Stars appear here only when a funder that funded this organisation chooses to give them, in its own name, with the year it funded. PhilaNova never rates on a free page.

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